idea of establishing Children's Hospice has emerged after the survey conducted
in 2013, which assessed palliative care needs of children. As survey results
prompted, annual statistics for children with palliative care need is 839
children from 0 to 18 years old.
Children's Hospice, a non-governmental organization funded by OSGF, has been
providing home care service for pediatric palliative patients free of charge.
Office for home care services was free of charge from Medical Corporation
Home care team
started work for palliative care kids. The goal of this service was to improve
life quality of children needed palliative care and support their family members.
groundbreaking of the first children’s hospice took place in fall 2016 with the
support of the Open Society Georgia Foundation in partnership with Medical
Corporation "Evex” and 4th President of Georgia Giorgi Margvelashvili.
On January 17, 2017,the first children's hospice in
Georgia "Firefly World” was
launched in Tbilisi, Georgia.
Since then, hundreds of donors,
among them being ordinary citizens and business companies, expressed readiness
to support the hospice. Over GEL 1 million was raised during a year to build
the hospice. The project of children's hospice is the best example of
cooperation between business companies, non-governmental sector, the President,
journalists and citizens, all to benefit
those in need.
Tbilisi Children's Hospice meets the standards of the world's best hospices
the moment when kids and their parents realize that there is no way to cure the
disease, palliative care plays the huge role in mitigating psychological,
physical, emotional situation. Hospice team tries its best to make kids happy,
alleviate pain and help their dreams come true.
name of the hospice "Firefly World” came from Georgian tale "The Adventures of
The Piper Boy Salamura”.The Hospice works in three basic directions: 24-hour
service for simultaneously 10 children and their parents; daytime center, where
children and their parents stay from morning to evening to receive
necessary services; home care service, which exists for already three year and
which provides services to 50 children, which will continue to operate.