On April 23, on Book Giving Day Mr. Mikheil Batiashvili, the Minister of Education, Science, Culture and Sport of Georgia and Mr. Giorgi Kekelidze, director of National Library paid a visit to Children's Hospice "Firefly World" and presented books to each of hospice beneficiaries.
On September 13, the charity auction in support of Children’ s hospice "Firefly World” was held. Representatives from business sector and international community attended the event. The event succeeded to mobilize 59 000 USD. Monthly costs of Children’s hospice functioning is worth around 17 000 USD.
In 2018 the hospice served 60 beneficiaries.
The First Lady of Georgia, Ms. Maka Chichua hosted Ms. Laura Mattarella, the daughter of President of Italy at the Children’s Hospice - Firefly World.
Mr. Mamuka Makhatadze, the Director of Children’s Hospice showed hospice premises including library, multi-sensor room and other facilities to the guests and provided information about hospice care services. The daughter of President of Italy spoke with the parents of the beneficiaries as well as hospice personnel and remarked the importance of hospice care for children and their families.
The facility is very nice and support you provide is essential for children and their families. It is also very important that you enable every member of the society to contribute and be part of the good deed – noted Ms. Matarella. Same-day the First Lady hosted a friendly lunch for Claudia Matrela.
The company Mayday helps us turn birthdays of our beneficiaries into real miracles. From today onwards, each patient will have a colorful birthday with all the necessary party decorations arranged by the company Mayday.
With the support of the Open Society Georgia Foundation hospice staff went through an intensive training course in the Netherlands from December 10th to December 16th. Study tour helped hospice staff to acquire professional and practical skills as well as theoretical knowledge. During the six-day program, nurses, a coordinator and a nanny went through a course in the Academic Medical Center (Amsterdam) and Emma Children’s Hospital. Practical knowledge acquired in the zones "ZonnaCare" and "Biezward".
The course covered issues like care, end-of-life care and support, pain management, ethics, communication with parents, telling the diagnosis and spiritual support.
Since 1992, Germany has provided financial support of more then 820 million Euros to Georgia and is the second largest donor after the Untied States in the field of development cooperation.
Embassy of the Federal Republic of Germany in Georgia has funded numerous projects in different fields. Funding received from the Embassy enables administration of Children’s Hospice - Firefly World to buy an adapted minivan and offer transportation service to beneficiaries of the day-care unit.
Day care is an important way to expand the range of services available to hospice patients. Day care beneficiaries spend all day at the day care unit and adapted minivan will be of a great help, especially for transportation of children using wheelchairs.
Yesterday shopping mall East Point visited us and they opened wonderful kid’s library. Library was created under the activity "back to school”. Thanks to everyone who came at East Point and purchase Back to School package at Focus Mocus Mokus. Last year, theirbirthday event was dedicated to the construction of children’s hospice.
Universal health Coverage and Palliative Care – Don’t leave those suffering behind-this was a slogan for celebrating the World Hospice and Palliative Care Day throughout the world on October 14.
This year, our children’s hospice "Firefly World” got involved in this initiative first time, together with other countries. Inpatients,day care and home care patients and their parents were marked this day together at hospice.
Palliative care is the multi-profile care, which aims to relieve the pain of people ill with terminal diseases and to provide social and psychological aid and spiritual compassion to them. And the hospices are institutions where the people are provided with physical and moral support during the last days of their lives. Such diseases are: AIDS, cancer in the IV stage, Alzheimer, Parkinson, cardio-vascular and neurology diseases... These people are palliative patients, for whom the only thing the medicine has left is to alleviate their condition, and these are the ones who need palliative care.
There are thousands of people who need palliative care in Georgia today, but currently the little number of beds and human resources at hospices cannot meet the growing demand of patients. As the result, thousands of patients suffer from severe physical and spiritual hardship, which prevent them from continuing full-fledged and decent lives.
On 21st of July, Corrective Plastic Surgeons – Kote Matitashvili and Sasha Kalantarov delivered a lecture for SOLO users. Doctors have talked about Plastic Surgery and aesthetic medicine and answered auditoria’s questions. Amount of 500 GEL was transferred to "Firefly World” account
Ukraine's First Lady Maryna Poroshenko, who accompanied her husband, President Petro Poroshenko on his official visit to Georgia, visited the children's hospice Firefly World on July 18. Maryna Poroshenko was hosted by Georgia's First Lady, Maka Chichua, a friend of the children's hospice.
Mamuka Makhatadze, the director of Firefly World, and Nino Kiknadze of Open Society Georgia Foundation showed the guests around the hospice and told them the history of its creation.
Maryna Poroshenko expressed willingness to share Georgia's experience of providing end-of-life care to children in Ukraine. It was agreed that Georgian experts will assist the Ukrainians in establishing similar hospice.
On July 10-15, with the support of Open Society Georgia Foundation, Joan Martson - Global Ambassador of Children's Palliative Care arrived in Georgia. During these 5 days Joan Martson guided the working process of the Hospice and conduct practical workshops for the staff of the Hospice. Guideline to children's palliative care has been developed with her assistance. Joan Martson has been working in palliative care for 28 years. She worked in children's hospice, as well as in various humanitarian missions, she was the President of the International Children's Network. Joan Martson made a great contribution to the elaboration and development of the policy of adults and children with chronic diseases.
The Australian U20 Rugby Union Team visited the children's hospice "Firefly World" on June 1. Rugby players arrived in Georgia to participate in the World Rugby U20 Championship and they decided to visit the children's hospice on International Children's Day.
The Australian rugby players painted murals on one of the walls of the hospice and took memorable photos with the children. In addition, as a sign of solidarity, they uploaded the hospice logo as their profile pictures on Facebook.
600 GEL was donated for Children’s Hospice.
Among the tournaments organized by World Rugby, U20 Championship takes second place by importance (after World Cup). The tenth annual international rugby union competition for Under 20 national teams is being held in Georgia. This is the first time our country hosts the tournament of such scale and importance.
Today "Firefly World” has received a lot of gifts. With the help of LTD "Jacobs Georgia” children’s hospice got photo camera, 1 month coffee supplies and miscellaneous medical supplies. Hospice received 1 month diaper supplies from the representative of "Sharm Tarde”
On July 2nd, good friend of the hospice, volunteer and a dedicated supporter – Kristina Smolskaya has dedicated her birthday to "Firefly World”. Her friends attended the birthday at "Fabrika” and at Kristina’s request, instead of giving her a birthday present; they donated birthday present money to the "Firefly World”. Just for the reminder, before the birthday, Kristina has conquered the peak - "Peak”and has finished the donation collection campaign.
On April 12th, musical seminary of conservatory and pupils of "Our School” organized charity Christmas market, where the school pupils were selling products which were made by them. Children also arranged the event musically. Parents, teachers and pupils friends have attended an event. The gathered amount, 1860.67 GEL was transferred at "Firefly World” account