Children's Hospice
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What is a palliative care?

Palliative care is the joint effort of multidisciplinary team, as well as informal care-givers including patient’s family members and other relatives to alleviate suffering and ensure welfare for persons with incurable diseases. These are incurable diseases producing pain and other highly distressing symptoms.
The palliative care cannot prolong life significantly but it totally changes patient’s condition – it relieves pain and other distressing symptoms.
Palliative care treats people suffering from serious and chronic illnesses such as cancer, cardiac disease such as congestive heart failure (CHF), chronic obstructive pulmonary disease (COPD), kidney failure, Alzheimer’s, Parkinson’s, Amyotrophic Lateral Sclerosis (ALS) and many more.
Palliative care focuses on symptoms such as pain, shortness of breath, fatigue, constipation, nausea, loss of appetite, difficulty sleeping and depression. It also helps you gain the strength to carry on with daily life. It improves your ability to tolerate medical treatments. And it helps you have more control over your care by improving your understanding of your choices for treatment.
Palliative care improves the quality of life for patients and their families by addressing the psychosocial, legal, and spiritual problems associated with life-threatening illness.

Palliative care is effective. Scientists have studied how palliative care can help children living with serious illnesses. Studies show that patients who get palliative care say that it helps with:
• Pain and other distressing symptoms, such as nausea or shortness of breath.
• Communication between health care providers and family members.
• Emotional support.

Who provides palliative care?
Palliative care is provided by an interdisciplinary team that may include a doctor who specializes in palliative medicine, a nurse, pharmacist, social worker, psychologist, dietitian, and volunteers.


Does accepting palliative care mean our family is giving up on other treatments?

No. The purpose of palliative care is to ease your child’s pain and other symptoms and provide emotional and other support to your entire family. Palliative care can help children, from newborns to young adults, and their families—at any stage of a serious illness. Palliative care works alongside other treatments your child may be receiving.

What is hospice care?
Hospice care is for people who are nearing the end of life. Hospice care services are provided by a team of health care professionals who maximize comfort for a terminally ill person by reducing pain and addressing physical, psychological, social and spiritual needs. To help families, hospice care also provides counseling, respite care and practical support.
Unlike other medical care, the focus of hospice care isn't to cure the underlying disease. The goal of hospice care is to support the highest quality of life possible for whatever time remains.

What's the difference between palliative care and hospice care?
Palliative care is whole-person care that relieves symptoms of a disease or disorder, whether or not it can be cured. Hospice is a specific type of palliative care for people who likely have 6 months or less to live. In other words, hospice care is always palliative, but not all palliative care is hospice care.

Children’s palliative care (CPC) is a specialty in itself, albeit closely related to adult palliative care. When a child is seriously ill, each person in the family is affected differently. That is why it is important that you, your child, and your family get the support and care you need during this difficult time. A special type of care called palliative (pal-lee-uh-tiv) care can help.Palliative care is a key part of care for children living with a serious illness.
First of all, children's palliative care is oriented towards the family. It is better to start palliative care as early as possible, since it is more effective for a child, as well as for his/her family members. You may start palliative care at any stage of your illness, even as soon as you receive a diagnosis and begin treatment. You don't have to wait untilyour disease has reached an advanced stage or when you're in the final months of life. In fact, the earlier you start palliative care, the better.


What is a Children’s Hospice?
- A children's hospice is a house/hospice specifically designed to help children and young people who are not expected to reach adulthood with the emotional and physical challenges they face, and also to provide respite care for their families.The basic concept of Children's Hospice is to create friendly and comfortable environment for children, where in addition to caring personnel great importance is attached to the environment, interior, name of the hospice and all those details that ensure a harmonious adjustment of a child to a new facility.
It has been estimated that as many as 7 million of these children around theworld will need palliative care each year (Rushton et al, 2002), although the true figure islikely to be higher.

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